One of our favourite authors is Terry Pratchett. His Discworld novels are hilariously funny, and manage to incorporate social commentary, and just generally poke fun at things we humans consider to be “essential”. Rob had been a huge Pratchett fan for years before he met me; I must admit that I started reading his books out of sheer desperation when I was off work for a year and there was nothing left in the house to read and I am ever so glad that I did – so thanks depression, for that!
In August 2007, Pratchett was misdiagnosed as having had a minor stroke in 2004 or 2005, which was believed to have damaged the right side of his brain. While his motor skills had been affected, the observed damage had not impaired his ability to write.
In December of 2007, Terry Pratchett released the following:
AN EMBUGGERANCE
Folks,
I would have liked to keep this one quiet for a little while, but because of upcoming conventions and of course the need to keep my publishers informed, it seems to me unfair to withhold the news. I have been diagnosed with a very rare form of early
onset Alzheimer’s, which lay behind this year’s phantom “stroke”.
We are taking it fairly philosophically down here and possibly with a mild optimism. For now work is continuing on the completion of Nation and the basic notes are already being laid down for Unseen Academicals. All other things being equal, I
expect to meet most current and, as far as possible, future commitments but will discuss things with the various organisers. Frankly, I would prefer it if people kept things cheerful, because I think there’s time for at least a few more books yet
)
PS I would just like to draw attention to everyone reading the above that this should
be interpreted as ‘I am not dead’. I will, of course, be dead at some future point, as
will everybody else. For me, this maybe further off than you think – it’s too soon to tell.
I know it’s a very human thing to say “Is there anything I can do”, but in this case I
would only entertain offers from very high-end experts in brain chemistry.
Since this announcement, Terry Pratchett has donated US $1 million to Alzheimer’s research, and has been making appearances in the media highlighting the low level of funding allocated to Alzheimer’s research.
Match It for Pratchett is a grassroots, spontaneous campaign put together by Pratchett fans worldwide, in an attempt to match Terry’s $1 million donation on behalf of various Alzheimer’s foundations around the world.
Alzheimer’s is not a disease that affects only the person stricken; it touches family, friends, and, in this case, complete strangers. Having spent years watching a family member lose all sense of reality through the ravages of this disease, I can only support any extra funding possible for research. It’s going to be a long, hard road, but hopefully within my lifetime there will be some significant discoveries to help rid the world of this horrible disease.
“Without memory, we are hollow persons, not only empty of a past, but lacking a foundation upon which to build the future”.